Schizoaffective Disorder

Most people have heard of schizophrenia. Films and TV Shows  like “A Beautiful Mind” and “Perception” have brought the disorder more in the open. Approx. 21 million people worldwide have schizophrenia, about 1.1 % of the population. A less heard of psychosis disorder is Schizoaffective Disorder. This is characterized as a combination of Schizophrenia and Bipolar Disorder, and affects less than 1% of the population. … Continue reading Schizoaffective Disorder

ITP: Immune thrombocytopenia

Imagine waking up covered in bruises of unknown origin. Or getting a nosebleed in the middle of work that won’t stop. ITP: Immune thrombocytopenia (previously called Idiopathic thrombocytopenic purpura) occurs in approx. 9.5 adults / 100 000. There are approx. 3.3 diagnosis each year for every 100 000 adults. While this disease affects men and women equally, the age bracket of 30-60 has more women … Continue reading ITP: Immune thrombocytopenia

PNES: Psychogenic Non-Epileptic Seizures

Even though PNES occurs in 20-30% of people who are seen at Epilepsy treatment centres, it is still considered a “rare” and little-talked about disease. PNES presents just like epilepsy, but the cause is not the abnormal brain electrical discharges that cause Epilepsy but rather psychological distress. PNES is diagnosed similarly to Epilepsy, through the use of EEG- video monitoring. As a regular EEG can … Continue reading PNES: Psychogenic Non-Epileptic Seizures

MEN 1 : PNET / Endocrine Neoplasia Type 1

This story comes from a Canadian woman who prefers to remain anonymous due to the stigma and difficulties of openly sharing her disease with employers etc.  My disease is not who I am. I tend not to dwell on the hand I’ve been dealt and I don’t see the point in educating you about my disease on a regular basis because you likely don’t have … Continue reading MEN 1 : PNET / Endocrine Neoplasia Type 1

Rare Disease Day

Did you know that today was Rare Disease Day? What is it? “Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health … Continue reading Rare Disease Day

5 Techniques to Fight Insomnia

Approximately 1 in 3 people suffer from some form of insomnia. We’ve talked before about Tips to Help You Sleep but what if you’ve migrated from “can’t sleep sometimes” to “staring at the ceiling night after night”? A lot of the time, treating insomnia involves a lifestyle change. Here are 10 common techniques that are used to treat insomnia.* Exercise We know that exercising can help … Continue reading 5 Techniques to Fight Insomnia

How To Save Money On A Reduced Income

Many people living with a chronic or invisible illness are forced to cut back on work hours, or to cut out work entirely. Some of us rely on government funding for disabilities, or have spouses who provide financial support. We all know the advice to have 3-months worth of rent and bills stashed for a rainy day, but how can you save money when you … Continue reading How To Save Money On A Reduced Income

6 Celebrities With Autoimmune Disorders

Just when we start to feel like no one understands what our lived are like, a celebrity announces that they have a serious illness. Sometimes it makes us feel better, annnnnd sometimes it makes us feel worse – they’re off being superstars and we can’t even get off the couch! Today we’re checking out six celebrities who live with autoimmune disorders Selena Gomez – Lupus … Continue reading 6 Celebrities With Autoimmune Disorders

5 Things You Wish Your Employer Understood

Living with a chronic or invisible illness not only reigns havoc on your personal and home life – it can seriously affect your work life as well. One of the hardest things can be getting employers or coworkers to understand and support the adjustments you may need to your work day. Here’s our list of things that we wished employers would get. Work Hours When you … Continue reading 5 Things You Wish Your Employer Understood

Epidural Steroid Injection: What You Should Know

For those with lower back and leg pain and not finding any relief with conservative treatments such as physical therapy, massage, chiropractic treatments, acupuncture, over the counter and prescription medications – an epidural steroid injection (ESI) might be a good treatment option for you. With an ESI, steroids and a local anesthetic are delivered directly into the epidural space of your spine via a needle. Here is a short video on how it’s … Continue reading Epidural Steroid Injection: What You Should Know